UM-KECC, in collaboration with the Centers for Disease Control (CDC) and University of California, San Francisco, has successfully established a Chronic Kidney Disease Surveillance System for the entire United States. It systematically tracks and reports information on the following six major topics: (1) the burden of disease, (2) burden of risk factors, (3) disease awareness, (4) quality and processes of care, (5) health consequences associated with CKD and (6) health system capacity available to deal with CKD.
This publicly available CKD Surveillance System contains the largest comprehensive collection of CKD data available in the US, from 20 different data sources. A total of 136 measures were identified under the six broad topics outlined above. Specific indicators were developed for these measures, yielding approximately 200 charts with corresponding tables. The first official website for the national surveillance of CKD was launched in 2012. Data are searchable and graphics customizable. The charts and tables are downloadable for public use at no cost.
Information on CKD measures relevant to Healthy People 2020, CKD in children and CKD in solid-organ transplant recipients are highlighted. New measures and indicators are continually under development and the website will be updated regularly. This resource can be used for targeted patient and provider education, to monitor disease burden and trends in health consequences of CKD and health care capacity and to monitor progress toward Healthy People 2020 kidney disease objectives.